Clinic Time!!

All I can say about today's CF Clinic is WOW!!  Bella did SO good!!!!

Checking blood oxygen

She has grown an inch and more importantly has gained 3 pounds!!! When the nurse was through taking her measurements she asked if she could please do her swab test first..."because I don't like swab tests so I want to be done early!"...And so they brought out the swabs and she sat by Daddy, stuck out her tongue and said "AHHHHHHH!" and it was over with! She got teary-eyed but a couple "jelly fish fist bumps" and she was fine!

Big breath and BLOW!!!

Then came the PFT'S (Pulmonary Function Tests) and she was ready!! Nose clamp on and apparatus in hand she blew 114%!!!  She was like a little tornado and blew all the leaves off the tree!

Her blood oxygen level is 100%!
Her BMI was 82% (up from 76% 3 months ago)

She carried on conversations with all of the Clinic staff...telling them all about her new glasses, how she can swim underwater "from the deep end to the shallow end of the pool with one breath", that she wants to be an American Ninja Warrior, about Kindergarten, about her school. She told them all about Mrs. Kornegay, Miss Ginger (school nurse), that she has 8 friends now and knows all their names "except for friend #4 that is in another Kindergarten class, but she is my friend!"

We have samples of a new chewable vitamin (she is getting a little tired of the liquid type) and she really liked the taste of  them.  We will be increasing her enzymes again..1 capsule for every 5 grams of fat (instead of 8 grams)..hoping to help her gain more weight and hopefully keep her intestinal tract moving.   She was ready for a blood test, but that won't be until December.

The staff was so very excited for her and how well she has done since starting on Kalydeco.

Just Harley Quinn and The Joker!

We couldn't be happier on the results today and Bella was VERY proud!

Take THAT CF!!!!  You ROCK, BELLA!!!