"I Fight CF"

"I fight CF"...that's what Bella told us last night.
We were helping Papa change some lights bulbs and she was telling him to be careful up on the ladder
and she suddenly said.."I fight CF".  (Yes, you do honey. And you are such a great fighter!)
 "I am brave and a fighter!" (Yes you are...and my hero!)

All smiles after taking her meds!

 "I want to fight it because someday I don't want to do treatments. I don't want to have CF anymore. I wish I didn't have CF." (I wish you didn't have it either but you are so good about doing your treatments and taking your meds. I couldn't be more proud of you!)
  "I guess I am brave and strong!" (Yep!! Bravest and strongest little girl I know!!)
Big smile and hug.
Melted my heart!!

Tiny little granules..they get mixed
with 1 tsp of liquid.

Bella's new meds seem to be giving her no problem,other then we have to wake her up early to give them to her. (She takes them every 12 hours and we are sticking very strictly to that schedule) She takes her Kalydeco at 7:15 am and 7:15 pm. "Grammy I was comfortable in bed!" (I know, sweetie. Do you want to lay back down?) "No..that's okay. I'll just play now." (Okie dokie!) "Can I just sit on your lap awhile?" (Works for me!)

Well...Harley Quinn has been here all three days this week! (And of course along with Harley you must have The Joker and Batman! And I am so confused as to who I am! LOL!!) She is "in love with my 'Carly Quinn' costume!"...I keep telling her it's "Harley Quinn" but it still comes out "Carly". Unless she is playing "Carly" before she turns into "Carly" and then she is just "Dr. Q" or "HQ". She is so imaginative!

We also spent a couple hours at the Will Rogers Memorial. Bella loved it and had so much fun in the Children's Museum. She wants to go back!

She is counting down her days until Kindergarten starts. August 18th is getting here very quickly!! She reminded me that I would be there everyday to pick her up. I told her I would be.."Promise?" (Yes, ma-am! Look I'll even write it all on my calendar and add reminders..not that I'll need it..but I will be there!) "I love you, Grammy." (Love you too, monkey butt!)